The literature is clear…people with systemic disorders like fibromyalgia, ME/CFS, POTS, CRPS, endometriosis and so many others have average diagnose times of over 6-10 years. It gets worse when you break down some of these diseases by race and gender. Diagnostic mislabeling is common because our healthcare system focuses solely on structural abnormalities rather than seeing dysfunction as nodes in a complex dynamical system. #healthcare #longcovid #disability #chronicillness #medicalgaslighting

Imaging can be misleading because: • Tonsillar descent can be borderline yet still symptomatic • Measurements don’t reflect CSF dynamics • Supine MRI may reduce crowding seen when upright • Symptoms can result from flow obstruction, not just descent depth • Low CSF pressure (like from a leak) can create acquired Chiari People can have severe symptoms even when imaging is read as “mild” or “incidental.” Common symptoms include: 🤕 Occipital headaches (often positional or Valsalva-related) 🌀 Dizz